In December last year, French-Canadian singer Celine Dion revealed that she had been diagnosed with a rare neurological disorder, Stiff Person Syndrome (SPS), that affects one in a million people.
In a press release shared to her social media accounts last year, Celine expressed that she would be cancelling her Courage world tour for all dates on-sale in 2023 and 2024 due to the rare condition.
In an update provided by Celine’s sister, Claudette in August this year, Claudette said that she has moved in with Celine, and they’re struggling to find treatment “that works” against the rare neurological disorder.
In the most recent update shared with HELLO! over the weekend, Claudette says that Dion is doing everything to recover and praises her strength. However, she explains that because SPS is such a rare illness, it’s tricky to find a treatment that works, even with top experts in the field on the team.
Claudette, as quoted by HELLO!, reflects on the symptoms that Dion is experiencing.
“There are spasms – they’re impossible to control. You know who people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles,”
Claudette then goes on to explain that there’s little they are currently able to do to support Celine, but they’re holding hope for her recovery.
“There’s little we can do to support her, to alleviate her pain…”
Continuing:
“We’re crossing our fingers that researchers will find a remedy for this awful illness.”
Claudette ends by saying that friends, family, and fans are all hoping for a full recovery for the 55-year-old icon.
“[Fans] love Celine…not only for the voice she has, but also for the human being she is. For the woman she has become, for the mother she has become.”
Compiled by Savanna Douglas
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