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Understanding how dementia changes family life 

by Chumasande Matiwane
Image Credit: Pexels

Dementia is more than a condition that affects memory; it can change the way families communicate, make decisions, and support one another.  

As the condition progresses, the person living with dementia may experience changes in thinking, behaviour, and independence, creating new challenges for family relationships. 

Also see: Why mid-year fatigue is taking a toll on South Africans 

According to the World Health Organisation, dementia is a syndrome caused by a variety of diseases and injuries that affect the brain.  

It is characterised by a decline in cognitive abilities, including memory, thinking, and the ability to perform everyday activities. Dementia is not a normal part of ageing, although the risk increases as people grow older. 

Changing roles within the family

One of the biggest impacts of dementia is the shift in family roles. A spouse, child, or relative may become a caregiver, helping with medication, appointments, finances, household tasks, and personal care. 

These new responsibilities can bring families closer together, but they can also create stress when caregiving duties are not shared equally. Some family members may feel overwhelmed, while others may struggle to understand the needs of the person with dementia. 

Communication becomes more challenging

Dementia can affect a person’s ability to remember names, follow conversations, or express thoughts clearly. This can lead to frustration for both the person with dementia and their loved ones. 

Families may need to adjust their communication style by speaking slowly, using simple sentences, offering reassurance, and avoiding arguments over forgotten information. Understanding that these changes are caused by the condition can help reduce conflict. 

Also see: Healthy conflict vs harmful conflict: Knowing the difference

Emotional impact on loved ones

Families often experience a range of emotions when someone they love develops dementia. Feelings of sadness, worry, frustration, and grief are common. Some relatives may feel they are losing the person they knew, even while that person is still present. 

Caregivers may also experience stress and exhaustion, especially when they provide support for long periods without enough assistance. Looking after the caregiver’s own health is an important part of providing effective care. 

The importance of getting support

Support is one of the main factors needed when dealing with a person living with dementia. Support from healthcare professionals, community organisations, and caregiver networks can make a significant difference.  

Families need to learn more about dementia, so everyone is better prepared to handle changes and provide compassionate care. Maintaining familiar routines, encouraging independence where possible, and creating a safe environment can improve the quality of life for the person living with dementia. 

Also see: Healthy habits to adopt before turning 40

Featured image: Pexels

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